Mount Nelson Primary School crazy hair day for Sebastian

STUDENTS at Mount Nelson Primary School have coloured their hair and added the gel to raise funds for an important cause during a student driven crazy hair day.

Grade six teacher Rachel Viney said the idea of a crazy hair day came from the students who wanted to raise money for a charity.

The day was aimed to support grade six student Sebastian Cawthorn, who has a very rare genetic condition called Nonketotic hyperglycinemia (NKH).

All funds raised went to Joseph’s Goal, a charity that was set up to increase awareness of NKH and raise funds for research.

“We wanted to do something that involved Seb and would be fun for him to look at, so we decided a crazy hair day would be something that would stick out for everybody to see,” Ms Viney said.

“The students just wanted everyone to bring a gold coin donation to help out and everyone loved the chance to come to school with crazy hair.”

The year six students said they loved having the opportunity to support Sebastian through crazy hair day.

“We love having Seb as part of our class,” they said.

Prep student Fraser Latham was excited to be involved.

“It was the best day ever,” he said

Sebastian’s older sister Isabella Cawthorn said the funds raised would help support Sebastian and others suffering from the condition.

“Seb can’t walk or talk, he doesn’t have much control over his body and he suffers from seizures daily,” she said.

“There’s no cure for NKH, which is why the kids at the school have organised this crazy hair day for donations for more research towards this condition.”

Ms Cawthorn said there had been so much support for Sebastian from the school.

“It’s really heart warming and this school has been amazing to our family,” she said.

“All the kids are comfortable with Sebastian, they love reading to him and it’s amazing here.”

For more information or to donate to Joseph’s Goal, visit http://www.josephsgoal.org/.

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